Service
Provided by DEBRA
Last updated: 02/10/2026 (27 days ago)EB Connect: Your online EB community. EB Connect is a free, private online social platform for the global epidermolysis bullosa (EB) community to connect with others. It’s a place for peer-to-peer connection, where you can connect with other people living with EB from all around the world. As EB Connect is a social network for EB patients and families, it’s open to anyone affected by EB. There are groups for all types of EB and different age groups. There is a page where you can not only connect with people from around the world, but also the best group for you to get in touch with other members of the EB community in the UK.
Volunteer with DEBRA
DEBRA is currently looking for volunteers for the following:
