Organisation
Last updated: 17/10/2025 (more than a year ago)The Butterfly Trust's aim is that people living with cystic fibrosis will have access to the support they need to ensure they can benefit from optimum home care and enjoy the best possible quality of life in the community. This means providing practical help and advocacy to promote their rights by giving them a voice in areas that include housing, finance, education, employment and independent living. We also offer emotional support and counselling to relieve stress and grant to alleviate financial hardship.
Areas covered: National
Advocacy Health Physical Disability / Sensory Impairment Support / Self-Help
Scottish charity SC033174 · Trust (founding document is a deed of trust) (other than educational endowment)
Services delivered by The Butterfly Trust
The Butterfly TrustWhat they do: The Butterfly TrustThe Butterfly Trust's aim is that people living with cystic fibrosis will have access to the support they need to ensure they can benefit from optimum home care and enjoy the best possible quality of life in the community. This means providing practical help and advocacy to promote their rights by giving them a voice… Read more about The Butterfly Trust | Edinburgh |
Volunteer with The Butterfly Trust
The Butterfly Trust is currently looking for volunteers for the following:
- Befriender for young person affected by Cystic Fibrosis
- Cystic Fibrosis Support Volunteer
- Driver for families affected by Cystic Fibrosis















