Progressive Supranuclear Palsy (PSP) is a neurological condition caused by the premature loss of nerve cells in certain parts of the brain. Corticobasal Degeneration (CBD) is a degenerative brain disease that affects people from the age of 40.
PSP and CBD are rare and little known. Education volunteers can help PSPA improve this situation. One of their aims is to make education and training available to as many health and social care professionals as possible, many of whom may have not come across PSP or CBD before. The education volunteer roole will increase the understanding of professionals about PSP and CBD, and will therefore improve their practice. The organisation also aims to have their volunteers raise awareness in local communities by offering informative talks to interested groups.
The reward of being an education volunteer with PSPA include: the opportunity for self-development, the opportunity to meet new people and to be valued as part of a team. There is also the unique reward of making a difference to people living with PSP&CBD and their families.
Training and resources will be provided to enable you o plan and deliver free training sessions on PSP, CBD and the services offered by PSPA to health and social care professionals and local groups. PSPA offer a comprehensive learning package that can be completed in your own time and covers all aspects of the role. A face-to-face training session completes the process. There will also be ongoing support and opportunities for you to meet and get to know members of staff including other volunteers, and to increase your understanding of the wider work of PSPA.
Out of pocket expenses paid?
Yes - To be confirmed once the opportunities are arranged. PSPA is experienced in reimbursing volunteers promptly and appropriately.
You need to be enthusiastic, enjoy speaking to groups and be able to manage a group effectively. Ideally you will have an understanding of PSP & CBD, be passionate about raising awareness and have empathy with the aims of PSPA. Experience in public speaking and confidence in Powerpoint will help, as will being able to travel within your local area.
Restrictions on who can volunteer
ue to the sensitive nature of discussion and presenting all aspects of progressive illness, PSPA feels this role is unsuitable for people currently caring for loved ones with PSP/CBD, or the recently bereaved.
Find out more about volunteering
View our introduction to volunteering page or contact us to find out more -
our experts love helping people of all ages and backgrounds to become volunteers.
Register your opportunity
If you are an Organisation that would like your opportunity to be shown on our website, promoted by us, and for our staff to be aware of it when matching potential volunteers, please submit an Opportunity Registration Form,
Help and Support
Call us to arrange an appointment
Give us a call on 0800 389 6046 to arrange an appointment to chat with our staff about what opportunities are available. Meetings can be arranged outside of the office in some cases.
Register with us
Fill out our registration form and a member of staff will then get in touch with you to discuss volunteering options to suit you.
If you volunteer or you're interested in volunteering then sign up for our free e-mail bulletin for volunteers - it only takes a few seconds. We send out bulletins roughly every two weeks and you can unsubscribe at any time.