Together they plan to develop recommendations and priorities for the future of neurological services, based on the voice of people with lived experience of these conditions.
They are using a number of ways to capture that voice, ensuring they understand the experiences of people with neurological conditions accessing services and their shared priorities. In order to do this, a mixed methods approach is being taken in order to get a breadth and depth of views. A review of existing information about experiences of accessing neurological services has been undertaken, a number of focus groups held and now a survey has been launched.
The survey is based on the themes emergent from previous research and following the focus groups further themes were included. Those themes are familiar to those working in this field; including issues like clear care pathways and care coordination, improved communication, education and support for carers.
Click here to read more and to take part in this survey.