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  • DEBRA - EB Connect Online Support Service

    Provided by DEBRA

    Last updated: 02/10/2026 (15 days ago)

    EB Connect: Your online EB community. EB Connect is a free, private online social platform for the global epidermolysis bullosa (EB) community to connect with others. It’s a place for peer-to-peer connection, where you can connect with other people living with EB from all around the world. As EB Connect is a social network for EB patients and families, it’s open to anyone affected by EB. There are groups for all types of EB and different age groups. There is a page where you can not only connect with people from around the world, but also the best group for you to get in touch with other members of the EB community in the UK.

    What they do, and where

    Areas covered: National

    Family Support Health

    Contact

    DEBRA, The Capitol Building
    Oldbury
    Bracknell
    RG12 8FZ

    Get directions
    E-mail
    Telephone
    01344 577 689
    EB Helpline
    01344 771 961
    Website
    ebconnect.org/topics/2536/home
    debra.org.uk/get-support/eb-support-and-resources/peer-support-events/eb-connect

    Volunteer with DEBRA

    DEBRA is looking for volunteers for:

    All volunteering opportunities »

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