voluntary organisations, social enterprises and volunteering
voluntary organisations, social enterprises and volunteering
Directory - organisation or service details
Provided by DEBRA
Last updated: 02/10/2026 (15 days ago)EB Connect: Your online EB community. EB Connect is a free, private online social platform for the global epidermolysis bullosa (EB) community to connect with others. It’s a place for peer-to-peer connection, where you can connect with other people living with EB from all around the world. As EB Connect is a social network for EB patients and families, it’s open to anyone affected by EB. There are groups for all types of EB and different age groups. There is a page where you can not only connect with people from around the world, but also the best group for you to get in touch with other members of the EB community in the UK.
DEBRA is looking for volunteers for:
All volunteering opportunities »
« Back to your search Start a new search
« Back to your search Start a new search
Is anything here wrong or out of date?
We'd rather know. Correcting an entry takes a minute, and what you send goes straight to the team who maintain this Directory.
Tell us about this record »View the Privacy Notice for registering an organisation in our Directory, or providing an update using our online form.
For more information, or if you'd like any support to register, please contact the Odin Team. Thank you.
| Click here if you're looking for our directory of employability services. |